This week is a bit different. Friday is my doctor day versus Tuesday because it’s time for my first monthly visit back in Tampa at Moffitt. We’re leaving Thursday and my appointments start at 9AM on Friday. Scheduled are lab work and a meeting with my BMT doctor. I expect a pretty uneventful visit – at least that’s the goal. I’ll post the results once we return.
So far this week, I’m still working on finding a routine, a schedule, and becoming more independent of mom. I think in a week I’ll have my schedule set. It looks like I’ll have something going on EVERY day – if it’s not me, it’s an appointment for the boys. Mondays and Thursdays look like they’re going to be my PT days. Tuesday is my oncologist day. Jacob is now slated to have speech therapy on Wednesdays. Right now, Josh has OT on Fridays, and we’re going to add PT as well; I’m just waiting for the woman who will do it to call me back so we can schedule a time – when? Who knows? Busy, busy, but I think it’s good in the sense that it will establish a routine and that’s really something I’ve missed since returning home. A schedule and routine will allow me to know what to expect – although the limitation can be annoying at time, especially since I don’t seem to have even one day off. As for independence, I’m driving more, cooking, making lunches, organizing… I still need to drive more but my confidence is there. I need do some laundry. Probably the more difficult task is Joshua. I can only change diapers wearing a mask and gloves, which I haven’t done yet because it’s preferred that I don’t do it at all (not that I’m complaining). Joshua is also exhausting; cute, cute, cute and much better about entertaining himself but still tiring. Fatigue is not as big of a problem as it once was, but it is not gone. Sometimes I do need a nap and I seem to suffer from allergy issues (which really didn’t used to be problem). Sinus headaches are the worst. Pain behind the eyes and I really can’t function. I had one Sunday and I pretty much spent the day in the bedroom relaxing – really not too bad, especially once the pain started to subside.
Today, we kept Josh home because he’s scheduled for his next picture session. I’m hoping I picked a good time and that he’ll smile and look adorable – but kids are unpredictable!
I’M BACK… Josh was pretty good. I couldn’t have done it without mom’s help. Squatting is not something I can really do well yet. I think we got some cute pictures and Josh stayed calm most of the time. The difficult part was getting him to smile; he was so serious! We go back next Thursday to look at and order the photos we want.
PRAYER: I would like to ask those who read my blog to pray for our friends Elli and Manny. Manny is currently undergoing his 7th round of chemo. We pray that his side effects are minimal and that his recovery is speedy.
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Jamie, I love reading your blog and hearing about Jake and Josh. I’ll write a longer letter soon.
I love hearing that you read the blog.