I had my second monthly visit back at Moffitt and I’m amazed that Joel and I did it all in one day. We left at about 7:15AM and arrived around 10:15AM. I still don’t know how Joel did the trip in 3 (not 4) hours. He says that he’s “the man” but I’m thinking he’s a “speed-demon.” My check-in time wasn’t until 11:30AM, so we went to Mojo’s – the used bookstore that mom and I discovered while living in Tampa. Then, we went to Moffitt. It was all new for Joel. Hard to believe, but he’s never been there. It’s always been me and mom. We were still early, so we went to the pharmacy so I could pick up my nasty, oily liquid that I still need to get at Moffitt because my BMT doctor told me that it would be really difficult to get outside the hospital because it’s a mixture. After that, check in, labs, and a bandage change. I got a big hug 2x from the lab tech that I would see pretty much every other day when I was an outpatient. Joel and I then had a little time to go and grab a quick bite at the cafeteria. Our doctor appointment was at 1PM and we got called back pretty close to that time. We also didn’t wait long before we saw the PA and my BMT doctor afterwards. My labs were similar to the last month’s, so the doctor was happy. She decreased my meds, which made me happy. She discontinued my neurotin (which I really don’t think I’ve needed for months); then she lowered my magnesium from 12 pills a day to 9 (so awesome!), and finally she lower my prednisone (steriod) to 5mg from 7.5. Things went by relatively quickly and smoothly. After checking out and making next month’s appointment, we were back in the car and heading home a little after 2PM. I think Joel and I were back home with some Chinese take-out by 5:30PM. The timing still really surprises me and I almost can’t believe we were in Tampa today.
Next month isn’t going to be so easy. It’s a biggie – 6 months since my transplant. I have to have another bone marrow biopsy, the pulmonary (lung) test again, a full lab workout, and injections (because I’m like a newborn) along with my regular doctor’s visit. All of this will hopefully happen on one day, but boy, is that going to be a LONG, unpleasant day. I’ll deal with it, though; I just hope Joel can. He’s never been with me for one of my biopsy procedures at Moffitt and I fully admit that I’m not exactly fun company before or after it’s done. In the end, I believe it will be good. So far, my results have continued to be positive so there is no reason for that to change. I do ask that you continue to pray for me, especially on June 25th – that’s the day in looks like I’ll be back at Moffitt. I’ll keep you posted!
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Glad to hear the good report, and will keep praying for you:)